'It's tricky, Hayley is as equally as disabled as someone with MS. Her body is shutting down but there is just nothing we can do. I can only suggest seeing a therapist to try and cope better with the emotional side of things'
How can somebody as ill as I am who because of an illness has such a low quality of life, no Independence whatsoever and 1 year ago was a perfectly normal girl, be told that because of a lack of knowledge of these neurological kind of symptoms I have to continue as I am with no help. I was also told I may get better after a few years, but nothing is ever guaranteed. I feel confused, frustrated and honestly I just don't know what to think or feel.
In a way I am glad I have not been diagnosed with MS or any other serious lifelong illness, but at the same time a diagnosis would allow me to at last accept what I have, and begin to educate myself on the illness. Instead I am still in the same position as I have been throughout this year - clueless.
I'm normally quite good at staying positive because it's the only thing we can do at times like this, but I am finding it extra hard at the moment.
I am also very angry at the fact that this week I got turned down for disability allowance. How ill does a person have to be to be entitled to some financial support? I will fight it though, because I believe the wrong decision has been made and I should be entitled to something.
I want to share with you this song, it's one that I like to listen to when I am feeling low. It makes me think of my best friend/boyfriend Alex, who has been (cliche moment!) my rock throughout this whole process. It helps remind me that I have such amazing people in my life who support me no matter what. :)
Any thoughts or words of wisdom greatly appreciated!
Hayley-Eszti x
Girl, you're so strong. Massive love for you
ReplyDeletex Catrina
Thank you Catrina x
DeleteStay strong Hun I hope you get your way with the dla there bastards I have a disability and we get nothing even though someways I can't walk 2 minutes without being in severe pain if
ReplyDeleteIf you ever need to chat feel free to email me xxxx coleoftheballl33.blogspot.co.uk coleoftheball@gmail.com xxx
DeleteThis post could have been written by me just before I was diagnosed. It's so scary and there seems to be no hope. Five years on and life does continue, it changes, but there's still life there!
ReplyDelete