Out for the first time in months!

Hi everyone Happy Easter weekend! 
Good Friday was a very good day for me because for the first time in months I went out! For any first time readers thinking what the earth? You don't go out? I have severe M.E which has left me house bound and I am rarely able to get out of bed. 

It was somewhat a milestone in my journey with M.E, because not only did I go out, but I managed to do so for a couple of hours without any major interferences - no fits, no passing out, just a normal outing, and that hasn't happened in a long time. Of course any major activity I do I pay the price for. Only a couple of hours out have left me in an awful lot of pain and as soon as I got home I was extremely sick and I haven't stopped experiencing some very nasty symptoms as a result since, but it's a sacrifice we have to make. It might be a shocking realisation to some people who don't really know much about M.E, but it's just part of it, I'm lucky I could even go out at all, even if I won't be able to move for at least a week!

We went to a forest not too far away, it was absolutely freezing and being in the wheelchair makes it extra cold because you're just sitting there not moving, but I refuse to go out with one of those wheelchair blankets my family often joke about buying me! Seriously though ... Isn't it meant to be spring now? Snow please will you disappear until next winter? NOBODY LIKES YOU!
My wheels kept getting stuck in the dusty sandy paths which was quite annoying but we saw the funny side to it, we didn't really consider that before going but at least Alex got a free workout! I was so happy to be outside with my boyfriend and it was so refreshing doing something to make me feel kind of like me again! Hopefully I will soon start to feel I can do it more often as I have noticed I am doing basic tasks I was unable to do a few months ago more easily, so that is a good sign, but I just need to concentrate on taking one step at a time.

I hope you all enjoy the rest of the Easter weekend, Have you done / doing anything special?

Lots of Love
The Easter Bunny Hayley-Eszti x


  1. Wonderful news Hayley-Eszti, and lovely photos :)

    Happy Easter from Caron

  2. Exciting day and great photos! You look beautiful. I haven't gotten properly dressed or put on a stitch of make-up in about six months. You've made me rethink that. :)

    1. It is a very rare occasion for me to do it but when I have enough energy I always try to make myself feel a tiny bit better, plus I feel sorry for my family always having to look at a zombie faced bird nest haired Hayley-Eszti!

  3. Good to know that you are getting better dear...i hope you will get through the sickness and be able to go out often...:)


    1. Thanks lovely, hopefully one day I will be able to go out and do things whenever I want! Thanks for your kind comment x

  4. Great news!! wonderful shots!


  5. Hi, I have only just logged onto my blog and saw your comment. Your blog is great, its so honest and gives such a true picture of what its like to have M.E. I love your pictures and you boyfriend sounds amazing. I have been really really severe and bedbound aswell, it does get better. I've added you on twitter, hope we can chat more :) Bekz xx

  6. You know I adore you and now you've promoted to full on inspiration. After seeing the photo of you in your chair, as well as a few others I know who are using wheelchairs to allow them to be more involved in the outside world, I am getting the help from my neurologist and insurance to get one of my very own!
    Carrie @ Just Mildly Medicated
    Future Wheel Chair Hottie

  7. Beautiful photos gorgeous girl xx


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