A life bigger than pain?

Hello all you lovely people!

It hasn't been the best of weeks for me. I've had a big pain flare up so my pain meds have been my best friend this week. One night I was in bed and I started to feel a very sharp stabbing pain throughout my whole body, it literally felt like someone had thrown 10 knives at me from the sky. Chronic pain is exactly that - a massive pain!

Has anyone seen that nurofen 'for lives bigger than pain' advert where they make it seem that taking a nurofen is enough to take away all your pain and you can live your life with no limitations? The advert is dramatic! Inspirational quotes, moving music and everything. It features clips of extreme activities like mountain climbing, motor racing and diving with whales. If I took the whole packet it still wouldn't be enough to even get me to get to the bathroom! I'll be happy when the day comes that I don't need to have an entire drawer overflowing with various pain medications, creams that rarely have any effect whatsoever and natural remedies that are are on the most part yet to show any signs or being useful. Not to mention the annoyance of needing to  take something almost every hour and if you forget or GOD FORBID fall asleep during the time your next popping of pills is due, you are ultimately left overdosed on your own pain and ohhh gosh that hurts!

Then again pain meds don't leave me in a particularly good state either. Often too 'drugged up' to concentrate, or function, incredibly drowsy and causing me to have all sorts of stomachs problems and side effects. If I was interested in taking drugs (which I'm not) I could be thankful for tripping out and hallucinating everyday all on my prescription, but I'm sick of seeing pirates playing the drums and thinking my wardrobe has a face. It's a catch 22. So yeah, I'll definitely be more than happy when a packet of nurofen is all I need to get through the day. Then maybe I can think about having a life bigger than pain and diving with whales and stuff.

Take care everyone, and to all you spoonies out there I hope your pain hasn't been giving you extra grief like mine has! Do you have anything you swear by during a flare up?



  1. I wish there was something I could say to make you feel better, to make you smile, to make the pain go away, if only for a moment. My dog Samson, the Samoyed, wrote a post on my blog that may make you smile if you are up to it. It's the second one on my blog right now, written two or three days ago. He's a big fluffy thing that I wish I could ship over to you, so you could bury your face in his fur let him give you wet kisses. Sending love and hugs. Oh, your guest post has now been read by over 100 people, so we spread the word a bit.

  2. I understand,my daughter has had a bad week as well. Your comments mirror hers on certain days. It's hard for us, who aren't experiencing the type of pain that envelops the whole body, to realize how that pain clouds everything else.

    Techniques that have been suggested to her: massage, yoga, herbals. Most of these have to be done before an attack. She has CVS, and I've seen some of the videos from sufferers in the UK, so you may know about that disease.

    Hope you feel better soon. When our kids hurt, mothers and dads hurt too.

  3. I have a chronic pain disorder too. It makes everyday a struggle and I'm limited on what I can do. I started having b12 injections as they thought it could help some of my symptoms but I'm yet to see a difference. I hope your flare up cools down soon.
    A fellow spoonie

  4. How I wish I could help you!!

  5. I've come across your site today, you have a great thing here. You are clearly a strong young woman who has gone through a lot but it will only make you stronger. I'm sorry to hear your pain has been giving you a hard time, keep on fighting it, you will get through this. I will be following from now on altough not sure how to so have saved it in my favorites tab.

  6. Hi Hayley. Your courage and attitude will take you a long way in helping to deal with this pain.
    I have heard that meditation can lessen the effects of pain over a period of time. Maybe something to look into?

  7. I am on Day 10 of a vicious migraine with accompanying photophobia, phonophobia, half blind from aura, no sleep, back pain, lack of appetite etc. I'm allergic to pain pills, so I'm trying to tough it out. So sorry you are having such a hellish time, but you made me feel less alone. Thank you!


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