I'm in the national press!

I can't believe I'm writing this, or that it actually happened. But this week I have been in four national newspapers. I started the week normally, probably with some sarcastic comment about how 'great' Monday's are, and I woke up on Wednesday to hundreds of tweets, texts, emails and phone calls. My story had made the Daily Mail, and The Mirror.  I then woke up on Thursday to see that it had also been featured in The Express and the Daily Star!

It has all been a bit surreal, extremely overwhelming, and crazy, but a good crazy! The support so far has been amazing and I am so so pleased to see how positive the response was from not only the general public, but also other chronic illness sufferers. We are hardly ever seen in the national media, and when we are it isn't always a true reflection of what we have to deal with daily. I hope this story was good. I hope it highlighted just how serious and devastating M.E can be.

Snippet from the daily mail click here for full article

I do feel like I need to point some things out however. To some people, the story looked like I was claiming I was cured and completely recovered. This is NOT the case. I am not cured, M.E is after all, an incurable, chronic illness. When the words 'recovered' are used, they are used with regards to my lock down paralysed state I was in where I couldn't move or talk or see. I have recovered from that stage, yes, although that's not to say it can't or won't happen again. I have made improvements, I was unable to wash my hair, eat by myself, lift myself up from bed on some days or do anything other than lay in a dark room. I can now do all of those things almost everyday on my own, which is great! I still have moments where the severe symptoms sneak back in, but on the whole I am not as poorly as I was for a long long time - for several years in fact. I still suffer and struggle every single day. I sometimes still have seizures. My life is still dominated by it and every choice I make I have to do with M.E in mind. I have to ask myself will it be worth the pain and sheer exhaustion that will follow. Sometimes it is, sometimes it isn't. If it's going to help others though, it almost always is.

© Caters News Agency

I also wanted to explain a bit more about why I am branching out as a disabled model. There was a comment on the Daily Mail article which said models are not important, which I couldn't disagree more with, ESPECIALLY disabled models. We need people to look up to, people we can relate to, and since I've needed a wheelchair and mobility aids myself, I have noticed how under represented we are in the media and in society. I'm doing this to help raise awareness and to show that we are not invisible. The amount of people who have come forward since the articles were published and said how glad they are to see M.E in the press is ridiculous, there were literally hundreds and hundreds. We need to know that people are doing things to help combat the ignorance or misunderstanding of the illness. The illness can strike anyone, at any time just like it did me. I think it gives people hope that we are being seen and being heard and having M.E featured in several national newspapers is a damn good place to start with that! 

I want to take this opportunity to thank you all, from deep inside of me for the love and support you give me. I never would have thought a year ago this would be possible let alone actually happening. I was always saying how much I wished we would see more stories, true and honest stories of M.E in the media and never thought I could be contributing to some of it. I also want to thank everyone who reads this blog and follows me on my journey. I hope I inspire you in some way. I hope I help to remind you that life is precious and to make the most of what you have. Never give up, never loose hope and never let anyone or anything make you invisible, because I can see you!

 'The measure of who we are, is what we do with what we have'

I'll leave you now with the links to all of the press coverage:

☮ & 

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